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National Node Description

Norway has been an early user of information and communications technology in the health sector. There are different types and categories of health data and personal health data filing systems in Norway as well as different types of records and registers such as patient medical records, local, regional or central personal health data filing systems, and data processed in medical and health research. The use of national ID numbers gives Norway a very good starting point for collecting knowledge of the health status and the health challenges of the population from health registries, patient records, and health studies.

Governance and legal framework
Legal framework and institutional responsibilities

The legal framework consists of: Statistics Act, Norwegian Public Health Act, Act on Personal Health Data Filing Systems and the Processing of Personal Health Data, Personal Data Act, Municipal Health Care Act, Specialist Health Services Act, Regulations on Patient Records, Health Personnel Act, Health Research Act, Code of conduct for information security and data protection in the healthcare and care services sector, etc. The composition of the statistical council is the basis for the evidence-based policy cycle.

The legal framework for patient medical records used for therapeutic purposes and those used for secondary purposes, is intricate and it is spread in and across various statutes and regulations.

Health information strategy

Strategy for Health Information System development is a part of the Government strategy for ICT. Digital agenda is to be fully digitally in the communication between all the administration levels and the people.

Health information sources and players
Main players (institutions)

Main players in the COVID-19 field in Norway: Below an overview of the C19 preparedness registry used in Norway in place since 31st of March, 2020. The Norwegian Directorate of Health and the Norwegian Institute of Public Health (NIPH) collaborated on setting it up. The NIPH is running the registry from day to day.

More information on the Emergency preparedness register for COVID-19 (Beredt C19) can be found here

Data owners Norway

 

Health information infrastructure and management
Health information infrastructure and management

The ministry of health has established a multisectoral HIS coordination mechanism with the other main HIS stakeholders in the country (e.g., a task force on health statistics); this coordination mechanism has a clear role and mandate.

There is the Statistics Council established by Statistics Norway (coordination body for official statistics) that includes representative from NIPH. There are several working groups consisting of relevant stakeholders regarding health statistics (primary health care, specialist health care, etc.). There is the National Advisory Board for e-Health (national governance, coordination and standardization) established by Norwegian Directorate of eHealth. Norwegian Board of Health Supervision is an independent authority responsible for the general supervision of the health services of Norway.

Norwegian Directorate of Health sets up policy and maintain quality assurance of HIS implementation and usage. All personally identifiable health registries have a quality control system in place. There are also public consultations on usefulness of knowledge/information products. Within SN tools for quality assurance comprise user surveys, quality reports, the use of quality indicators, measurement and analysis of process variables, risk management and internal or external quality reviews as European peer reviews.

The country has adequate capacity to: (1) implement data collection; (2) process the data; (3) analyse the data: and (4) disseminate the analyses and the (micro)data.

Existence of a unique patient identifier or general personal identifier?
Yes
Name of identifier
Unique identifiers exist for almost all registers and databases, providing the possibility to link data across settings/administrative levels/themes (e.g. social inequalities in health)
Updated on 08 September 2023