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Coordinating Institution
National Institute for Public Health and the Environment (RIVM)
Contact person for health information portal
Eveline Van der Wilk
National Institute for Public Health and the Environment (RIVM)
Governance and legal framework
Legal framework and institutional responsibilities


Public Health

Public health services include a wide range of activities and state programmes (regulatory as well as non-regulatory) with the primary objective to protect and promote the health of the population and to prevent diseases through vaccination and screening programmes.

The Public Health Act (Wet Publieke Gezondheid) provides the institutional framework for shared responsibility between national government, local government (municipalities) and the private sector.

Health Care

The Dutch healthcare system is governed by 4 basic healthcare-related acts: 

  1. the Health Insurance Act (Zorgverzekeringswet); 
  2. the Long-Term Care Act (Wet langdurige zorg);
  3. the Social Support Act (Wet maatschappelijke ondersteuning);
  4. the Youth Act (Jeugdwet).
Health information strategy


Health Care

The development of a national health information strategy related to health care lies with the National Health Information Council (Informatieberaad Zorg). There, health care organisations and the ministry of Health work on the sustainability of the information framework in health care, currently serving four goals: 1) medication safety, 2) patient central, 3) standardized data transfer 4) register once, then reuse. One of the 4 Communities within the council is the Community of Data Experts. Their focus was the secondary use of data for statistics, research and health (care) policy. The Council is currently being reorganised.

Health information sources and players
Data protection
National data/privacy protection regulation and specific data access policies

Regulation:

  • GDPR applies to all data sources, though differences in interpretation and operationalisation exist. 
  • Medical confidentiality is also anchored in legislation through the Medical Treatment Agreement Act (Wet op de geneeskundige behandelingsovereenkomst; WGBO).
  • Every organisation can create its own dataset. The precondition is that all activities around that dataset meet the rules of the GDPR and the Medical Treatment Agreement Act. The Dutch Data Protection Authority (Autoriteit Persoonsgegevens) evaluates whether the dataset meets the requirements of the GDPR. The NICTIZ guideline quality registries describes to what elements a registry should comply. In many cases there is a data-collecting/data-analysing institute per domain. Because the GDPR is interpreted differently acorss the institutes and organisations, data is sometimes no longer shared amoung health care institutes and the data-collectors.


Catalogue:
A catalogue available from the RIVM-website provides insight in all public health and care data collections (n=>190). It was commissioned by the Dutch MoH to prevent duplication in data collection. The meta-database contains information on how to access the data, as well as codebooks.


Open data:
Open data can be found here. It is possible to filter on the theme 'Zorg en gezondheid'/'Care and Health'

Health information infrastructure and management
Health information infrastructure and management

There is no centralised database for HI.

Existence of a unique patient identifier or general personal identifier?
Yes
Name of identifier
pseudonymised BSN
Updated on 31 March 2023