Main players (institutions)
The SNDS : French National Healthcare Data System
In France, the national health care data system (or SNDS) is managed by the National Health Care Insurance Fund called the CNAM.
The SNDS is a database gathering pseudonymised medico-administrative data covering the entire French population thanks to data collected from reimbursements of healthcare by the CNAM. In this database, individuals are identified by an ID_SNDS identifier, which is currently generated by applying two pseudonymisation functions (FOIN 1, FOIN 2) to a vector of information on the person: social security number (or NIR) of the person entitled to benefits, date of birth of the beneficiary, sex of the beneficiary.
The SNDS was created in 2016 building on the SNIIRAM (National Inter-Scheme Information System of the Health Insurance which was created in 1999 to constitute a national database of medico-administrative data to improve the management of the National Health Care Insurance Fund (CNAM), to contribute to better decision making in healthcare, improve the quality of care care as well as to provide healthcare professionals with relevant information on their activity.
The Health Data Hub: a unique gateway to healthdata
In 2019, the Law on "the organisation and transformation of the health system" has expanded the SNDS, initially a single base, into a system of databases.That same year, the Health Data Hub is created and is authorised to make data from the expanded SNDS available. (More details in the Health Information Sources section) The Health Data Hub guarantees easy, unified, transparent, and secure access to health data to improve the quality of care and patient support.
It is a public interest group set out by ministerial decree, mainly publicly funded and bringing together 56 stakeholders divided into 9 group including notably state, national health insurance fund, healthcare professionals, hospitals/healthcare structures, research and teaching ecosystem, users...