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Coordinating Institution
TERVEYDEN JA HYVINVOINNIN LAITOS
National Node Description

Finland does not have a formal National Node but national organizations such as Finnish Institute for Health and Welfare (THL), Statistics Finland, the Social Insurance Institution of Finland (KELA), and Social and Health Data Permit Authority (Findata) work closely together and organize joint meetings to discuss issues related to health data.

Contact person for health information portal
Hanna Tolonen
Governance and legal framework
Legal framework and institutional responsibilities

The Finnish Institute for Health and Welfare (THL) studies, monitors, and develops measures to promote the well-being and health of the population in Finland. It gathers and produces information based on research and register data, and provides expertise and solutions to support decision-making. 

THL serve various parties: the government, municipal and provincial decision-makers, actors in the social welfare and health sector, organisations, the research community, and the public, and helps them to secure quality of life for Finns in a fair but dynamic welfare society.

THL is an independent expert agency working under the Ministry of Social Affairs and Health.

Health information sources and players
Main players (institutions)

Health information is collected/maintained by

  • Finnish Institute for Health and Welfare (THL) 
  • Statistics Finland
  • Social Insurance Institution (KELA)
  • Social and Health Data Permit Authority (FINDATA)
Data protection
National data/privacy protection regulation and specific data access policies

Data Protection Act 1050/2018 is available in English at https://www.finlex.fi/en/laki/kaannokset/2018/20181050 

Act on secondary use of social and health care data 552/21019 available in Finnish at https://www.finlex.fi/fi/laki/alkup/2019/20190552 

Health information infrastructure and management
Existence of a unique patient identifier or general personal identifier?
Yes
Name of identifier
Personal identity code
Updated on 23 November 2023