Overview
The emergency preparedness register for COVID-19 (Beredt C19) was established to give the Norwegian Institute of Public Health an ongoing overview and knowledge of the prevalence, causal relationships and consequences of the COVID-19 epidemic in Norway.
Beredt C19 was established so that the Norwegian Institute of Public Health (NIPH) can quickly obtain the necessary knowledge about the COVID-19 epidemic, enabling the authorities to assess risk and implement measures to safeguard the health of the entire population. The register was established in close collaboration with the Norwegian Directorate of Health, the Norwegian Intensive Care and Pandemic Registry and other organisations that are responsible for data sources included in the register.
Beredt C19 includes information that has already been collected in the healthcare service, national health registries and medical quality registers, as well as other administrative registers with information about the Norwegian population. Initially, the register contained data from the Norwegian Surveillance System for Communicable Diseases (MSIS), the Norwegian Patient Registry (NPR) and the Norwegian Intensive Care Unit and Pandemic Registry (NIPaR).
Gradually, the need for data sources has increased, and information has been obtained from several data sources. For an overview of which sources are included, see further down this page. Obtaining new information from new sources will be decided on an ongoing basis where there is a need for analysis and knowledge. Using data that are already registered avoids duplicate reporting and additional work for healthcare personnel and figures from different sources will be matched as closely as possible.
The right to access one's own personal data in health registries follows from the Health Registry Act § 24 and from GDPR chapter III, art. 15 (with certain exceptions in the Personal Data Act §§ 16 and 17). Personal information in contingency registries must also follow the GDPR and Health Register Act's rules on the right of access, cf. Health Emergency Preparedness Act § 2-4 third paragraph second sentence.
In Beredt C19, information is obtained from existing health registries and data sources but personal information that can directly identify individuals is not stored. In order to be able to gain insight into what information is available for the individual in each source, the data subject must contact the original source in the usual way. Since Beredt C19 only receives sub-datasets from the original sources, there will be less information about the person registered in Beredt C19 than in the original sources.
Demographics
Dataset
The right to access one's own personal data in health registries follows from the Health Registry Act § 24 and from GDPR chapter III, art. 15 (with certain exceptions in the Personal Data Act §§ 16 and 17). Personal information in contingency registries must also follow the GDPR and Health Register Act's rules on the right of access, cf. Health Emergency Preparedness Act § 2-4 third paragraph second sentence.
In Beredt C19, you can request access about which data sources contain information about you. Furthermore, it is possible to request insight into which analysis teams have been given access to and have performed analyes with the relevant data sources. Although analysts have had access to the information about the registrant, they do not have access to your personal number (see also description in the previous section). If you want to apply for access, complete this form. Thereafter, the form and a certified copy of valid identification must be sent by post to the NIPH (to "postmottak").
By logging in to www.helsenorge.no you can request digital access to the Norwegian Patient Registry, the Municipal Patient and User Registry, SYSVAK, the Medical Birth Registry and the Prescription Mediator. For other registers, reference is made to each individual source (see links to current sources below).
Contact
Norwegian Institute of Public Health, PO Box 222 Skøyen, 0213 OSLO