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    Description
    Scientific peer-reviewed publication
    Description/abstract

    The coronavirus disease (COVID-19) pandemic is very much a global health issue and requires collaborative, international health research efforts to address it. A valuable source of information for researchers is the large amount of digital health data that are continuously collected by electronic health record systems at health care organizations. The European Union’s General Data Protection Regulation (GDPR) will be the key legal framework with regard to using and sharing European digital health data for research purposes. However, concerns persist that the GDPR has made many organizations very risk-averse in terms of data sharing, even if the regulation permits such sharing. Health care organizations focusing on individual risk minimization threaten to undermine COVID-19 research efforts. In our opinion, there is an ethical obligation to use the research exemption clause of the GDPR during the COVID-19 pandemic to support global collaborative health research efforts. Solidarity is a European value, and here is a chance to exemplify it by using the GDPR regulatory framework in a way that does not hinder but actually fosters solidarity during the COVID-19 pandemic.

    Topics
    Policy » Adherence/ compliance to measure
    ISSN Number
    2369-2960
    Access rights to the publication
    Closed access
    Country:
    Geo coverage
    Multinational
    Journal
    JMIR Public Health and Surveillance
    Publisher
    JMIR Publications Inc.
    Year of Publication
    2020
    Volume
    6
    Issue
    2
    Pages
    e19279