Malta Cerebral Palsy Register

Overview
Acronym
MCPR
Type of information
Registry data
URL of the data source
https://deputyprimeminister.gov.mt/en/dhir/Pages/Registries/CerebralPalsyRegist…
Description

In 2016 the Department of Paediatric and Adolescent Health and Directorate for Health Information and Research signed a Memorandum of Understanding with the aim of collaborating to develop a national population based Cerebral Palsy (CP) Register. This Register was accepted as a member of the Surveillance of Cerebral Palsy in Europe (SCPE) and follows the guidelines of this European institution on the data collection and analysis of CP.

Governance and legal framework

All data is collected and processed in accordance with the General Data Protection Regulation, adopted in the Data Protection Act XX of 2018. On the 8th of October 2019, Legal Notice 263 of 2019 was published. This Legal Notice is intended to enact the Processing of Personal Data (Secondary Processing) (Health Sector) Regulations (S.L. 528.10 of the Laws of Malta) (“the Regulations”).

Funding

The Registry is a collaboration between the Directorate for Health Information and Research and the Department of Paediatric and Adolescent Health (Mater Dei Hospital) and is wholly funded by the Government of Malta.

Free keywords
cerebral palsy
Topics
Health status » Morbidity/disability » Disability
Country(ies):
GEO coverage
Nuts 1
Target Population
Patients
Age range
From 0 years
Sex
Both
Data Collection Period
From 01 January 2016 - Ongoing
Language(s)
English
Updating Periodicity
Daily
Personal Identifier
National identifier
Level of aggregation
Individual
Terms of data access - URL
https://deputyprimeminister.gov.mt/en/dhir/Pages/request-for-data-form.aspx
Terms of data access

 Data request form & email: https://deputyprimeminister.gov.mt/en/dhir/Pages/request-for-data-form.aspx ; healthinfo@gov.mt.

Linkage possible
Yes
Data Owner(s)
Directorate for Health Information and Research – Ministry for Health – Government of Malta,
Department of Paediatrics and Adolescent Health, Mater Dei Hospital, Malta
Contact name
Dr Miriam Gatt and Dr Stephen Attard
Contact e-mail
healthinfo@gov.mt
Contact info (address)

DHIR, 95, Telghet Gwardamanga, PIETA', Malta

Department of Paediatrics and Adolescent Health, Mater Dei Hospital, Triq Dun Karm, L-Imsida, MSD2090, Malta

Updated on 10 August 2022