Overview
In Belgium, about 15 centres are recognised for the treatment of diabetes in youth. Through regular data collections, the IQECAD project monitors quality of care in these centres and provides individualised feedback, helping the centres to improve their quality of care. Recently a continuous study within IQECAD has started to measure the mental wellbeing of children and adolescents with diabetes (the Strengths and Difficulties Questionnaire, SDQ). Patients are asked to fill in a questionnaire.
Target population: children and adolescents (< 19 years old) with Type I Diabetes.
Data collection started in 2008 and is still ongoing. Linkage is possible with IQED, IQED-Foot, IMA and NR
RIZIV/INAMI
Demographics
Dataset
The database includes information on selected sociodemographic characteristics (such as age, gender and place of residence, among others), diabetes diagnosis, treatment, examinations and complications. Type of data: pseudonymised individual data. Data are not publicly accessable. Specific data (analyses) are provided upon request.
Data requests can be made and are discussed with a Group of Experts. An anonymised data set can be shared.
Contact
Rue Juliette Wytsmanstraat 14, 1050 Brussels
https://www.sciensano.be/en